Lion of Judah TUBB2B Foundation
Lion of Judah TUBB2B is a global group of families committed to accelerating the science to cure TUBB2B & to supporting each other.
Newly Diagnosed?
Join our registry
Register with Ciitizen to collect as much de-identified group data for researchers to use. We need as many to register to improve the chances for successful clinical trials.
Get Involved
The best way to help someone with TUBB2B is to help spread awareness and stay informed. Start by connecting with Lion of Judah Foundation, holding a fundraiser, and becoming a volunteer.
New families
If you're new to TUBB2B or Lion of Judah Fund, we have developed a Resource Guide with basic information as well as important tools for you and your doctor.
Donate
Your donation is important and will be used for research to develop Gene Therapy's and Gene Editing. Together we can put an end to TUBB2B!